I was born with a chromosonal disorder that prevented my brain from making an important neurotransmitter.  The lack of this important neurotransmitter lead to a variety of types of seizures:  petite mal, myoclonic and grand mal seizures.

I was put on a wide variety of drugs, that caused an even wider profile of symptoms, including gaining 80 pounds in 6 months on one drug.

Years later medical research discovered that many of the drugs:

  • made the problem worse
  • others caused metabolic disturbances that would not be corrected
  • others caused Central Nervous Systems dysfunctions that also could not be corrected

Through my own work I was able to resolve the problem…haven’t had seizures in years…despite my EEGs which suggest that I should not be able to speak – I am a world wide speaker; they said that with the disorder, I probably wouldn’t graduate from high school – I am working on my 3rd doctorate; they
epilepsy-156105_640 said that I would probably be dead by the time I was 26 years old…I am over 50!!!

So let’s look at an article I found in a journal:

Keeping Costs High

July 17th, 2007

When you hear the words “Epilepsy Foundation,” you probably immediately think warm fuzzy thoughts like “advocates,” “caring,” and “helping people.” But more than helping epilepsy patients, the foundation appears to be helping Big Pharma…and themselves by extension.

Before you get mad at me for talking about the foundation in a less than warm and fuzzy way, consider this (as reported in The Wall Street Journal). The Epilepsy Foundation got nearly $2 million in funding from Big Pharma in 2006, including as much as $999,999 in contributions from UCB SA – a major epilepsy drug manufacturer.

It’s not just cold, hard cash the foundation gets from the drug companies, though. Four of its board members come from Big Pharma. And so does the head of PhRMA, the industry’s “trade group” (read: lobby).

Armed with that information, think about the current statements being made by the Epilepsy Foundation in favor of making it very hard for epilepsy patients to get generic drugs. The group is saying that switching patients to generic drugs could set off seizures (though there doesn’t seem to be any substantial proof to back up this claim). And nothing is scarier to an epilepsy patient than a seizure…especially when their current medication has been preventing them so successfully.

But that’s the thing: According to the FDA – and doctors and pharmacists around the country – generic drugs are as effective as the name-brand version. In fact, they have to be chemically identical be to get approval from the agency. But they can not (they’re not allowed to be) completely identical, because that would could possibly be misleading to patients. So here’s what will be different: the color, the markings, and the price. Generic drugs cost consumers substantially less than name brand drugs. Oh, and in case you think that generic is the same as over-the-counter, it’s not. If you needed a prescription for the name-brand drug, you need a prescription for the bioequivalent generic – a drug that, according to the FDA, must be identical in “dosage form, safety, strength, route of administration, quality, performance characteristics, and intended use.”

So it makes sense that the drug companies would hate generics. It even makes sense that the Epilepsy Foundation would oppose them – they know on which side their bread is buttered. And in their current plan to keep us paying high prices, the lobbyists are actually circumventing the federal government, and heading straight to the states. That may sound counterproductive, but it actually makes sense when you consider that state laws can be enacted in about three months…while federal law changes can drag on for years. The plan is to forbid pharmacists from switching patients to generics (as normally happens as the generics become available) without an explicit “OK” from the prescribing physician. Who probably gets lots of attention (and dinners and show tickets and free samples) from drug company reps.

And in case you’re wondering why your doctor doesn’t already have a way to prevent generic substitution – he does. Just look at any prescription you have. On the bottom is a little checkbox. If he checks that box, the pharmacy has to use the name-brand drug prescribed by your doctor. Problem solved, no lobbying needed.

Posted in FDA, Big Pharma, Generic Drugs, Epilepsy | Click Here to Comment »

There are lots of different causes of epilepsy including:

  • toxicity
  • low glutathione
  • oxidative stress
  • inflammation
  • pH imbalance

Amongst a variety of other issues.

Make sure you find a good health care practitioner who knows how to look at a wide variety of causes of epilepsy as well as a wide variety of treatments.

For more information, contact: Dr Holly at holly@choicesunlimited.ca

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